This site is meant to be a resource for people with Myalgic encephalomyelitis/chronic fatigue syndrome (CFS/ME) and people who think they might have it. It is here to help you navigate your experience, become better informed and to self advocate with medical professionals.
I am not a doctor, I am another person with CFS/ME, based in the USA.. I have collected the most reliable links and resources I could find (CDC, NIH, WHO, Stanford, NPR, etc.) and put them together along with my own experience of CFS/ME and what I have heard directly from others with CFS/ME. I do my best to cite everything here.
Any diagnosis and treatment must come from a medical professional.
If you are wondering whether you have CFS/ME, your first stop here is the symptoms page, but I also highly recommend Jennifer Brea's TED talk in the Podcasts and Videos section as a first stop.
CFS/ME is a not a rare disease, it is a severely under-diagnosed one. "According to an Institute of Medicine (IOM) report published in 2015, an estimated 836,000 to 2.5 million Americans suffer from ME/CFS, but most of them have not been diagnosed." (source: https://www.cdc.gov/me-cfs/index.html)
How to Get On A self-advocacy guide for anyone who is homebound or bedbound in the US. Special focus on folks with Myalgic Encephalomyelitis
ME Association (UK based)
They also run ME-PEDIA a database of all things related to ME
Solve ME is a non profit dedicated to finding treatments and a cure for ME
There are also various support groups on social media.
This page created by Mary Corey March. I do not have a contact here because too many responses would be overwhelming for me to handle.