My Story

Since then (2 years ago) I have improved to mild-moderate (as of 6/2025).  I am moving around the house freely, painting again sitting upright, going to concerts (with ear protection but yes with the noise and lights and crowds!), traveling more and without crashing.  

Because of protecting my energy envelope plus POTs I am still using a power wheelchair outside the house, but for shorter periods I am using it more upright than before (before I was fully reclined).  

Aggressive rest before and after major activities is making a lot more possible.